"That Doesn't Make Sense"

   "That doesn't make any sense, but we'll keep an eye on it."  Not quite something you want to hear from your doctor.  Granted, I should be used to this by now, but still... my primary doc assumed it was from the Plaquenil (an anti-rheumatic med) I've been taking to reduce the serious joint swelling, but it turns out she was wrong.  All it's done is give me a kind of slight fake tan.  Not really a laying on a beach all summer or living in a tanning bed tan, but just enough to keep me from my usual Casper paleness--minus the extra freckles.  Except all my scars are changing colours.  They're turning light pink and white.  Even scars I had from childhood that were long forgotten--and long forgotten how I got them.  Others?  Well, they've been kind of funny to remember how I got them.  Like the 2 broken, split knuckles in a fight, the dog bite because I was a dumbass, or the one on my elbow from the car accident that broke my neck and several other bones.  For a 25mph crash into a giant rock, I did a lot of damage that day--including putting my elbow through the dashboard.  F*cking spiders.  But my rheumatologist has absolutely no clue as to why the sudden change in colour.  So it's more lab tests, an "huh, that's odd, I really don't know, it doesn't make any sense, but we'll keep an eye on it."  Then it's off to worry about other things.  Like doubling my Imuran, for instance. 
    When I first started on the immunosuppresant, I was given a 5 page "warning" pamphlet of possible side effects (including lymphoma) and precautions in addition to a consult by my pharmacist that was reinforced when I developed bronchitis and had to call my doctor.  The whole OCD hand sanitizer, hand washing, avoiding sick people, masks... basically, I had to do everything possible to avoid getting sick--even funnier?  Avoid injury. I love my new rheumatologist, but she has NO idea just how creative I am when it comes to injuring myself without even trying.  I haven't noticed any difference since I started the medication except I'm in a lot more pain than I was, but I'm not as stiff in the morning. 
      Why that is, again, she doesn't know.  She suspects my disease is progressing a lot more rapidly now that I have no steroids in my system.  It could also be that as the swelling is going down and I'm losing weight (taking more stress off my joints), they're adjusting to the lack of pressure and the pain is temporary.  A third scenario?  The pain is from permanent damage.  I have no idea what to think other than hoping that my organs aren't affected or starting to become affected.  But she goes and doubles the Imuran.  Turns out I was on a "baby" dose for autoimmune diseases.  I can go up to 5 times the dose I was on.  Fantastic, right?  I get to double my germophobic efforts now.  I don't even want to THINK about what I'll have to do if I have to go up to the highest dose--live in a climate controlled, germ free bubble maybe? Haz Mat suit?  I'm open to suggestions..